We do agree Fate but we part company on this notion that the nebulous State is out for control so that it can be the end all be all on these types of issues.
We're talking about a situation in the UK right? Not some backward developing rogue nation. So behind every State there are people. And I just cannot bring myself to believe that the folks involved in this decision are attempting to control who lives and who dies. I would give them the benefit of the doubt that whoever "they" are, they are concerned about all of the various stakeholders, especially the baby and his parents.
Again, their intention is not to kill or take life. Their decision is to remove the extraordinary means which they know will indirectly contribute to the baby's death. That's a far cry from killing someone. It's an important distinction to make I think. Barring killing someone out of self defense, killing is always and everywhere wrong in my opinion, even in end of life situations.
I believe this decision on their parts is a mistake given the context of all the other factors I outlined above. I ALWAYS say its better to err on the side of life, especially when there is a chance, though be it remote, for a better quality of life, or better, a chance to experience love, even if the person in question can not "know" they are loved or physically feel loved. I could go on about the power of human touch but that's for another time.
By the way, that same God has gifted us with faith. That baby will be fine on his return to God. It's up to us to safeguard his every chance at life and to mitigate his suffering when possible. Great good can come from loving evening the most desperate of mentally and physically disabled persons, or desperately sick individuals.
Allow me to direct you to one of my living heroes who is getting up there in age. A Canadien philosopher and former military man who has altered the course of human history through his profound work.
Jean Vanier is the founder of L'Arche. He has spoken and written beautifully about the privilege of being given the opportunity to love even those who seemingly have no point in living.https://en.wikipedia.org/wiki/Jean_Vanier
His communities, called L'Arche, now exist all over the world. These are communities where so called normal people like you and I live in community with those who are mentally disabled and sometimes even profoundly physically and mentally disabled persons. Those who have lived in L'Arche communities report life altering experiences. People who entered with plans for a life trajectory full of success and promise, often end up tearing those plans to pieces as their compasses are overhauled on account of their experience. And all from the opportunity to love and be in community with those who many would deem not worth the effort.
Check him out Fate. I know you will dig this guy if you haven't heard of him already. His philosophy flies in the face of the kind of worldly reasoning being thrown about to justify belittling the value of human life at any and all stages.
His is a challenging and seemingly impossible message to consider at times. Only truly understood through experience, the great governor of the heart, and not the intellect.